I thought it might be interesting to put together a list of chronic pain disorders or conditions that result in chronic intractable pain as one of the signs/symptoms.
I write this in response to a commenter (hard to tell if all the comments were from one person using aliases or more than one person.) It is the same old story of defending the reality of chronic pain. People believe when you have other invisible illnesses, like cancer or diabetes. This should be no different but for some it is and that is a shame, for them and for anyone in their lives who suffer with/from chronic pain disorder.
Please feel free to add others.
Lupus
Rheumatoid Arthritis
CRSP, complex regional pain syndrome
Fibromyalgia
Back problems and injuries that cannot be fixed
Arthritis (which can be very severe)
Multiple sclerosis
Anaesthesia dolorosa (phantom pain)
Trigeminal neuralgia and other neuralgias of the cranial nerves
Cancer
Post cancer pain.
Failed surgeries that result in neuropathies that cannot be cured.
Migraine
Osteoarthritis
My book.
"Fascinating" Stephen S. Hall. writer, N.Y.Times magazine. "Hard to put down." A.C.P.A., American Chronic Pain Association.
Of course then there is chronic pain that is a condition unto itself as well as a part of other disease entities.
ReplyDeleteThis is one good article: http://emedicine.medscape.com/article/310834-overview
"Chronic pain syndrome (CPS) is a common problem that presents a major challenge to healthcare providers because of its complex natural history, unclear etiology, and poor response to therapy. CPS is a poorly defined condition. Most authors consider ongoing pain lasting longer than 6 months as diagnostic, and others have used 3 months as the minimum criterion. In chronic pain, the duration parameter is used arbitrarily. Some authors suggest that any pain that persists longer than the reasonable expected healing time for the involved tissues should be considered chronic pain.
CPS is a constellation of syndromes that usually do not respond to the medical model of care. This condition is managed best with a multidisciplinary approach, requiring good integration and knowledge of multiple organ systems. (The images below demonstrate conditions associated with CPS.)"
Another one is chronic myofacsial pain syndrome/disorder
ReplyDeleteThanks Missycats
ReplyDeleteCarol on your list the CRPS is posted wrong. Just letting you know.
ReplyDeleteoops. Thanks. (I don't always do as good an edit as I should.)
ReplyDeleteHi Carol! I just happened to find your insightful blog. I have one to add to the list, if I may. My fiancee is a chronic pain patient, and his official diagnosis is, "Neuropathic disfunction of the gastrointestinal tract due to insulin sensitivity" (or abdominal neuropathy.) Basically, the insulin his body produces severely irritates the nerves in his gastrointestinal tract, which causes constant, violent spasms in his stomach. As you can imagine, this condition causes an extreme level of pain; his gastroenterologist pegged him at a level 10 on the pain scale. We just relocated from Houston to Dallas, and ...well, you probably see what's coming. After 7 years of steady medication and stability, he cannot find a doctor in Dallas who is willing to give him medication. He is scheduled to run out of medication in a little over a week. He's about to lose all quality of life, and we are going to lose our home, because he cannot work anymore. Staying strong though... apologies for the long-winded comment. I wanted to thank you for writing this blog; it's so comforting to know that he isn't alone in this struggle. We're starting our own blog here soon, documenting his unnecessary detox, and all the drama that comes with being a pain patient. I'd love to keep in touch with you.
ReplyDeleteHi Rumpus, Thank you for commenting. He is very lucky to have you.
ReplyDeleteThe doc in houston calling and talking with the new one hasn't helped?
Are the ones you have tried pain management guys or GI's? I know how hard it is to find someone to understand, accept the pain, and give the meds also. At the least the docs need to understand that if they will not write they need to help him come off the drug(s) rather than force a withdrawal (and I don't care what the drug is, narc or not, it is the rare one that you can stop abruptly after years of use).
I hope the issue with the house is not something that would happen immediately and there might still be some answers for that.
I wish I had a constructive suggestion for you. It stinks and is wrong. Once again the DEA is hurting another person in pain.
You sound like you both are fighters, that is so important. You definitely are not alone (you might also want to check out our group Women In Pain Awareness, WIPA, (for men and women in pain, and those that support them.) http://apainedlife.blogspot.com/
sometimes some folk there can recommend docs they have used/or have some good suggestions.
Im glad you found me ((*_*)) and very glad for your comment.
Please do keep in touch and good luck with the blog, make sure you post your address here (and WIPA too). Many gentle hugs to you and your fiancee
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