My book.

My book.
"Fascinating" Stephen S. Hall. writer, N.Y.Times magazine. "Hard to put down." A.C.P.A., American Chronic Pain Association.

Total Pageviews

Pages

Wednesday, September 25, 2013

TRIGEMINAL NEURALGIA (tn) FACT SHEET

1st International Trigeminal Neuralgia Awareness Day on October 7th 2013.

Monuments and Bridges throughout the globe will turn teal for the day (teal is the color assigned to tn)
The Oamaru Opera House in New Zealand, a falls in Canada, the Boston Zakim Bridge, Terminal Towers of Ohio and The Mid Hudson Bridge New York among others..

Sufferers of Trigeminal Neuralgia (TN) are living with what is called "the worst pain known to man" and "The suicide disease".
The trigeminal nerve is a cranial nerve that gives sensation to the face.

When someone develops trigeminal neuralgia the sensation becomes pain. This pain can effect certain parts of the face. For most people it is only one half of the face that is effected but for others it can be both sides.

The majority of patients have pain that is in the jaw and mouth area. Often they are misdiagnosed and have extensive dental work, including multiple tooth extraction which is of no help in this disorder. Other patients may have the pain in the middle of their face, forehead and eye area, in both, or in all three.

For many victims the pain comes out of the blue, the pain often described as a stabbing sensation, electric shock, a lightning bolt through your skin. The pain usually lasts for only a few seconds to several minutes. There is no visual evidence of trigeminal neuralgia, such as swelling or redness. Diagnosis is reliant on the description and area of the pain.

Age used to be a determinate because it is more common in women over 50 but it can be found in all ages, including children, and in men as well as women.

Treatment usually begins with anti-convulsants which may stop or reduce the pain. If these do not work there are a number of neurosurgical options but these often carry a high degree of risk/side effects.

The majority of people with this disorder live with some level of the pain for all of their lives. For others it is not only debilitating but disabling.

Because it is considered a 'rare disease" there is a serious lack of funding. As a result there is still no agreed upon cause. The lack of financial resources also means there is a dearth of research into finding a cure.

The lack of funding also means there is no accurate data on the number of sufferers globally. It is estimated that 1 person in 15 -20,000 has trigeminal neuralgia and 4 to 8 million sufferers worldwide.

TRIGEMINAL NEURALGIA AWARENESS DAY, October 7th 2013, is a day to not just raise awareness, but to raise money for research as well through the selling of teal ribbons. These are availale for sale at http://www.tnnme.com/tn-awareness-day-ribbon.html. The profits are to be donated to The Facial Pain Research Foundation’s research efforts for a cure of this devastating disease and to TNA-The Facial Pain Association’s awareness efforts.

11 comments:

  1. Hey I have a quick question about your blog, could you email me when you have a chance? Thanks! -Cam

    ReplyDelete
  2. Love ur blog .i to I'm a suffer of Tn for about 8-9yrs can't recall when I first got it. Meds make forget u see.will meds or pain one or the other. I decide to start a blog also just to keep my mind off the pain and misery of my daily struggles I go throu.take ALOOK at my blog if u like marinastnstory.weebly.com I'm going to follow u if u don't mine

    ReplyDelete
  3. Hi Carol- Incredibly useful post. Perhaps we can open up a dialogue about your experience with Tn? I can be reached at mtrucillo(at)recallcenter(dot)com. Thanks!

    ReplyDelete
  4. Cancer, Love and Inner Guidance
    http://jack--hemsworth.tumblr.com/post/76437256534/cancer-love-and-inner-guidance

    ReplyDelete
  5. Just stumbled onto your blog. I've been dealing with chronic pain for 7 years and was diagnosed with Small Fiber Neuropathy two years ago. I take Gabapentin (anti-convulsant) it works a little, but still have to take opiates to ease the pain. www.myneuropathyandme.blogspot,com

    ReplyDelete
  6. All about trigeminal neuralgia causes, symptoms, and treatment define by herbal care products online store. we offer Trigical for natural wellness without side effects.

    ReplyDelete
  7. Treatment options include medications, surgical procedures including microvascular decompression, radiofrequency rhizotomy, glycerol rhizolysis and balloon compression, and SRS

    visit:Radiosurgery India

    ReplyDelete
  8. As a sign of gratitude for how my husband was saved from neuralgia, i decided to reach out to those still suffering from this.
    My husband suffered neuralgia and it was really tough and heartbreaking for me because he was my all and the symptoms were terrible, we tried various therapies prescribed by our neurologist but none could cure him. I searched for a cure and i saw a testimony of so many people who was cured from neuralgia. and so many other with similar body problem, and he left the contact of the doctor who had the herbal cure to neuralgia. I never imagined neuralgia has a cure not until i contacted him and he assured me my husband will be fine. I got the herbal medication he recommended and my husband used it and in one months he was fully okay even up till this moment he is so full of life.neuralgia has a cure and it is a herbal cure contact the doctor for more info on drwilliams098675@gmail.com on how to get the medication. Thanks for reading my testimony .

    ReplyDelete
  9. As a sign of gratitude for how my husband was saved from neuralgia, i decided to reach out to those still suffering from this.
    My husband suffered neuralgia and it was really tough and heartbreaking for me because he was my all and the symptoms were terrible, we tried various therapies prescribed by our neurologist but none could cure him. I searched for a cure and i saw a testimony of so many people who was cured from neuralgia. and so many other with similar body problem, and he left the contact of the doctor who had the herbal cure to neuralgia. I never imagined neuralgia has a cure not until i contacted him and he assured me my husband will be fine. I got the herbal medication he recommended and my husband used it and in one months he was fully okay even up till this moment he is so full of life.neuralgia has a cure and it is a herbal cure contact the doctor for more info on drwilliams098675@gmail.com on how to get the medication. Thanks for reading my testimony .

    ReplyDelete
  10. I have an uncle who is suffering from Trigeminal Neuralgia and have witnessed first-hand how difficult it is to live with chronic pain. He takes regular injections and medications for his facial muscles, and is undergoing proper treatment at one of the best private health services in the city.

    ReplyDelete
  11. ALL THANKS TO DR WILLIAMS WITH HIS HERB MY WIFE WAS COMPLETELY CURED FROM NEURALGIA .
    Is my pleasure to comment on this site and i thank the admin of this site for his/her great work so far.one of the happiest moment in my life was when the doctor confirm that my wife is been free from this illness. this awesome moments makes me the happiest man on earth, I really don't know how to thank DR WILLIAMS for helping my wife get cured for over how many year of suffering from neuralgia. i came across DR Williams contact through a headline news on internet about how DR Williams help a woman to get cured of her neuralgia and so many other with similar body problem ,i contacted him and he told me how to get his herb,few day later he sent me the herbal portion which my wife take every morning for 28 days, and his medicine was able to cure her completely from neuralgia. and now she very mush okay without any side effects whatsoever, If you have neuralgia, you can contact him on his email address drwilliams098675@gmail.com for advice and for his product.

    ReplyDelete