tag:blogger.com,1999:blog-4622074794036937969.post6574779421991400997..comments2024-03-20T13:40:31.330-04:00Comments on THE PAINED LIFE, 30 years, and counting, of living with chronic pain: PAIN PATIENT BILL OF RIGHTScarol levyhttp://www.blogger.com/profile/17436295608962472880noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-4622074794036937969.post-71757801006819454532013-01-05T15:06:10.744-05:002013-01-05T15:06:10.744-05:00I was not aware of this. It is draconion and as y...I was not aware of this. It is draconion and as you wrote in the other comment - you wouldnt treat a dog this way.<br />If you can consider writing to your state legislators as well as to the newspapers and talking/writing to your local TV stations. <br />The more people who speak out the greater the chance things can be changed.<br />It occurs to me you might also start a petition on care2 or facebook, just as 2 places, I know there are a lot more. (The white house has a page for petitions, not sure if you could do that there.<br />I am always amazed at how many signatures these petitions can get and I have seen changes come about because of them.<br />Thanks Carolcarol levyhttps://www.blogger.com/profile/17436295608962472880noreply@blogger.comtag:blogger.com,1999:blog-4622074794036937969.post-41872990049874925172012-12-27T03:17:38.697-05:002012-12-27T03:17:38.697-05:00"14.Patients have the right to refuse suggest..."14.Patients have the right to refuse suggested methods of pain treatment."<br /><br />Thanks to the DEA that is no longer a right for pain patients, at least not in FL and WA state, and probably other states. In my experience (and others have reported similar issues) I am not allowed to refuse any method that is suggested by my doctor. If I refuse, I am dropped from their practice and no med refills. <br /><br />Steroid injections no longer help my lower back or broken SI joint, possibly because of the amount of new damage (degenerative disc disease, and herniating/rupturing discs etc. etc.). At most I get none to very little improvement and that only lasts for a maximum of 7 to 14 days. That is not counting the 3 bedridden days as a side effect of the shots themselves. Also I react badly to the standard steroid dose and am told that I am developing an allergy to it.<br /><br />When my doctor decides it is time to repeat these injections, even though he clearly admits they do no good for me and is aware of the reaction, if I remind him they do not work for me I am told "If you aren't willing to do injections, then I will no longer refill your pain medication." I have also been told that if I refuse any other procedure (some of which are dangerous) he recommends, then I will no longer receive any pain medications and will be dropped from his practice. I've been a patient of this office for a little over 10 years, never any trouble at all (no early refills, never "lost" a script or bottle of pills, never failed the urine test).<br /><br />This has even gotten worse as, in Florida, thanks to new laws, a pain patient has no privacy of their medical records. Law enforcement does not even need a warrant to get the record. Even worse if a law enforcement officer requests my record, I am immediately dropped from the practice which I have been going to for over 10 years now. With no follow up services required of their physicians, such as weening me off the medications I am on. This terrifies me as I would go into severe withdrawal and that is dangerous for a person with high blood pressure as it can cause strokes or heart attacks. <br /><br />It is getting worse. And none of it has stopped the addicts. <br /><br />I wish these rights were actually written into law.Raven/Missyhttps://www.blogger.com/profile/15502412577584236318noreply@blogger.com